by Bryan Mac Murray, Outreach Specialist, Social Security Disability Help
Batten disease is a genetic disease which can devastate a family. After receiving a Batten diagnosis, parents and families are affected in all areas of life. The care, medication, and equipment required for keeping your child healthy is incredibly expensive.
This can bring a massive financial burden upon a family. A child with Batten disease may need round-the-clock care, and one parent may need to leave work to provide that care. Medicine is expensive, and necessary supplemental care has a high cost. Social Security disability benefits are available to help families manage the costs caused by their child’s disease.