BBDF Attends Batten Registry Conference in Germany

IMG_0672Mary Beth Kiser, BBDF President & CEO, is currently in Germany, attending a patient registry meeting aimed at coordinating and collaborating a comprehensive Batten disease registry.The meeting includes Batten clinicians and researchers from Germany, France, Japan, Finland, Turkey, Serbia, United States, United Kingdom, Netherlands, Spain, Italy and Poland. Registries are important for patient care, clinical trials, and to suggest research areas based on natural history information.