BBDF Travels to Chicago & Arlington

On Monday, Craig Benson and Danielle Kerkovich, PhD met with Tammy Keilian, PhD and Michelle Hastings, PhD, who were in Chicago attending the Society for Neuroscience meeting.  Both researchers are focusing on CLN3 deficiency, which results in juvenile Batten disease. Dr. Keilian is working on gene therapy for CLN3, whereas Dr. Hastings is using combined strategies to create a modified version of the CLN3 protein. BBDF learned about their promising strategies, which could potential treat juvenile Batten disease.PrintOn Wednesday and Thursday, Dr. Kerkovich attended the Rare Diseases and Orphan Products Breakthrough Summit
in Arlington, VA. The 2015 Summit features 20 speakers from the FDA, NIH Office of Rare Diseases and the National Center for Translational Science. The focus of this year’s meeting is to address the progress of rare disease diagnosis, drug development, and patient engagement.

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