The other day, we received a ring and note in the mail. The note explained how this man’s friends lost their son to Batten disease. He went on to say, “I don’t have extra money to donate for research so I thought maybe you could get some money for [the ring]. It’s not worth too much but I’m hoping every bit will help in finding a cure for this terrible disease. Thanks and Good Luck.”
When trying to find a cure for a rare disease, every bit does help! We could not be more grateful for this man’s kind heart and generosity. Thank you for reminding us there are many ways to help find a cure for Batten disease. Because of people like you, we can imagine a world Beyond Batten.