My Perspective: The VanHoutans

Never Give Up

On the day that her older brother Noah was diagnosed with a rare and terminal disease, Laine VanHoutan came marching into the dining room, chanting the words she had just heard from Dora the Explorer.

“Never give up! Never give in!”

Little did Laine know that those words would become her parents’ mantra as they have grappled with seeing not one, but two, of their children fall victim to Late Infantile Neuronal Ceroid Lipfuscinosis – also known as Batten disease.

Read the full article 

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