Students and alumni of the University of Texas at Austin come together to fight Batten disease by participating in Run to the Sun Relay – an overnight relay benefiting Beyond Batten Disease Foundation in Austin, Texas.
Eight-year-old Garland Benson shares what it is like living with a sister who has Batten disease.
Larry Chauvin is a PE teacher at Casis Elementary School in Austin, Texas. When he learned about his student’s fight with Batten disease, he wanted to help. Chauvin recruited a team of teachers to run 90 miles overnight in relay race from Enchanted Rock to Austin. This April, the teachers prepare to take on this challenge for the fourth time.
Beyond Batten Disease Foundation-funded results provide the very first mechanistic understanding (activation of cellular waste removal) necessary for designing cyclodextrin-based solutions for juvenile Batten and other diseases.